Political Labels and The Recent Marches in America

I have never defined myself by political affiliation. I have voted all over the ballot based on the issues I believe in my whole adult life. No matter what my views happened to be I have never been verbally assaulted by my friends and family because of said views, until now. Suddenly I am a “Liberal” and a “Left Side Enthusiast,” a “Feminist” and a “NASTY WOMAN.” Now, facing my mid-thirties I suddenly have labels. Suddenly all of my morals and beliefs cause me to be filed into this small labeled box based on who others think I am. I have never seen myself as one that can be labeled. I am not Liberal nor am I Democrat. I am not Republican nor am a Conservative… I am HUMAN. I stand for Human Rights, no matter where those rights lay their roots. I was unaware that human rights could become so blurred based on party lines. Given this realization, if I must take on labels to be a decent human being then so be it. I guess I am a Liberal, Democrat, Feminist, Nasty Woman who happens to advocate for the rights of pretty much everyone.

With that said, never have I witnessed an election polarize so many families, so many friends. I've never, since my birth, seen the rights of the people stomped on with such indifference. You can say America isn’t divided all you want. This is just the belief of a few. It seems to me that we are being fed “alternative facts” by the spoon full and expected to swallow it like its nourishment being provided for our bodies and minds. I didn’t realize being able to observe the obvious made someone Democrat or Liberal. I always thought it made them perceptive. From where I sit, it seems like we are more divided than ever. The far left and the far right acting like toddlers throwing fits. No wonder people are compelled to rise and resist.

In case you somehow have blinders on and have missed it. On Friday January 20^th thousands of humans revolted in violent riots against the inauguration of Donald J. Trump as President of the United States of America. The widespread damage and chaos of these riots were overwhelming and produced no positive results.

Inauguration riots 2017

Saturday January 21^st millions of human beings, worldwide, peacefully marched in cities all over the globe in unity of different human rights. Again, last night, January 24^th, 2017 people marched in cities across the U.S. in opposition of the pipelines that President Trump is pushing through. They marched in recognition of the treaties that the Federal Government is ignoring and in the memory of the lost loved ones of our Native American brothers and sisters whose final resting places are being threatened in the name of greed. More marches are being planned for various reasons. I’ve, personally, never seen a movement like this.

A pipeline protester. Picture Courtesy of tigrignamovies.com

I’ve never seen so many of my fellow humans so frightened of one person since… probably Hitler. America has always stood by our peoples’ basic rights. The right to assemble, to protest, is one of those rights and I will always advocate for it. I will never advocate for the right to riot, this is not a basic right- it’s a crime. Despite the difference in the two, it seems that the Government may now wish to target our right to assemble, as well as other basic rights. The combination of the given actions of the Trump regime in his first week is making some people around the world nervous.

Sign seen at the Women's March

The March on January 21^st, 2017, was lovingly dubbed “The Women’s March.” It was, arguably to some, the single largest civil rights protest in human history and serves as an excellent example of the nervousness of the masses. Though it was called the “Women’s March,” it was about so much more than just women. Everyone marched for their own beliefs and for everyone’s beliefs. On that date, women, children and men of all backgrounds, ages and ethnicity marched across the globe in recognition that the direction the American Government is headed has the potential of being dangerous. They marched because basic rights are being infringed upon and threatened. They marched because after all these years we needed to show that we, the American people-and people of the world, will not be silenced when it comes to the basic rights of others.

The people marched on the 21^st and the 24^th because our planet is being threatened- All mention of Climate Change was erased from the White House website shortly after President Trump’s inauguration; shortly thereafter the American peoples’ basic rights to be informed of what is going on with our environment was taken from us. Our National Parks and USDA silenced. Communication with the American public cutoff. Our EPA only allowed to resume communications after the black out order if they agreed to erase mentions of climate change from their website. During this march, many people of the world stood together and screamed that OUR WORLD matters. That climate change is real. They screamed that we want to have a planet to leave to our grandchildren. I have seen talk and criticism of how some of the protesters acted in regards to their trash. Given that some were marching for that reason and some were not- it doesn’t surprise me that there are human beings that are ignorant to littering and its effect on our environment or that some of them would be present during marches the size they were that day. We are talking millions of people marching for various reasons. Luckily, museums are collecting the protest signs to keep.

A toddler with a self made protest sign at one of the many Women's Marches across the globe

In America people are resisting in the name of our various beliefs. The right to birth control, and (even though I am not in support of it) the right of a woman to obtain an abortion. President Trump and VP Pence have made clear their stand points on abortion, cutting international funding to any facility providing or educating about abortion. Also, advocating and pushing for the all-out outlaw of abortion in these United States and the defunding of Planned Parenthood. As a teenager, PP provided me with the birth control that kept me from becoming an unwed teenage mother with few options. We, as a people, are outraged at Trump’s pick for Secretary of Education. As many have said, our children deserve a Secretary of Education that actually cares about education. We also deserve one that has had experience in education; a nominee that knows the simplest facts about Federal Civil Rights laws like IDEA, that knows the difference between “growth” and “proficiency.” Her confirmation will threaten the basic rights of our countries most vulnerable-our disabled children.

The people marched because healthcare for low income families, the disabled, and the elderly is being threatened. The Republicans "solutions" aren't realistic solutions to many American families. We are being thrown to the wolves by the top 1%. All HUMANS deserve healthcare, period. 

(Blog continues after Healthcare picture below)

Some Healthcare facts for you from http://healthresearchfunding.org/universal-healthcare-pros-cons/

Per New YorkStates Department of Health these countries have universal healthcare, yet we in the U.S. do not:

Copied from the New York State Health Department

 I have seen posts on Social Media about the consequences of the actions of these nations after providing universal healthcare. The majority being the most concerned with where the money to pay for said healthcare comes from. Taxpayers, it would come from mostly taxpayers. You know what, I am fine with paying a little more tax if it means ANOTHER HUMAN BEING doesn’t die from a preventable disease.

Why you ask- because at some point we must stop seeing everything through red and blue tinted glasses and start seeing life from the viewpoint of others. I was taught as a little girl to LOVE OTHER PEOPLE. What has happened to that?

The people of America are rising-up because all we have done for domestic violence is at risk. Crisis Centers are at risk. At age 15 I watched my mother thrust into a life of abuse. I watched her thrive from the help she received from the local Women’s Shelter. These places are important. No woman or man deserves to be in a situation where their lives are at risk at the hands of another. No child deserves to set under a table and scream as one parent assaults the other in front of them. This happens daily in America, all over the world. Without the guidance of Women’s shelters and Family shelters a lot of these individuals have no clue how to live a life without abuse. Why would any person be OK with cutting programs like this? It seems, according to USUncut.com, President Trump plans to cut 15 major Government offices. One of those being the Office of Violence Against Women. This particular department makes up around $480 million per year. That breaks down to $3.50 per taxpayer. I don't know about anybody else but it also makes me nervous that talks of cutting this office are happening at the same time that Russia is voting to decriminalize some forms of Domestic Violence.

I was told by friends before the election that Donald Trump was for LGBT rights, despite what I was hearing online and in the media. They were all saying that there was nothing to worry about. I really tried to believe them. That was until all mention of LGBT rights were erased from the White House Website. Just poof, gone and no replacement is put up. It creates an uneasy feeling when a party is notorious for infringing on the rights of minorities and then things like this happen. As a result, people assembled and marched in the name of LGBT rights. I hope that they are creating a phenomenal page in support of LGBT rights and have yet to launch it, somehow I won't hold my breath. Under the Obama administration we saw great strides in the rights of the LGBT community, including but not limited to the legalization of Gay marriage. Under Trump's administration, who knows what will happen. I may just be crazy but I don't see how judging who and how someone loves is a political issue to begin with. Love is love to me. I watch some people preach about being nonjudgmental Christians then stand together in the same breath and judge others based on who they love because of their own personal religious beliefs. I am scared for my friends who are in the LGBT community. I'm scared of what will come of President Trump's Supreme Court appointment this week. I am hopeful that he won't turn the clock back decades on the rights of many people I know and love, and many strangers I aspire to meet.

Also, yes, as the name of the march suggests, people are resisting because to them it feels like women’s rights are being threatened. It is easy to see why. We elected and inaugurated a President with dozens of sexual harassment cases in his past (whether founded or unfounded, they exist) and an ex-wife that tells of his notorious womanizing. A man that, on tape, talked about grabbing women by “their pussies” shortly after marrying his beautiful wife. A human being that sat and talked about how money and power make it OK to do those things to another human being. I will never understand how any person, any woman, could hear his words on that tape and be ignorant to the damage caused by them. The most powerful man in the world- talking about the gender that births your generations like we are meat. Like we are beneath men. Like we are toys. It’s disgusting. It doesn’t matter what we wear, say, or do for a living- our basic rights and our intimate areas are not up for grabs! That should go without saying. I don't care if he was planning to run for office when he said it or not, the point is that he did in fact say it. It is indicative of the type of man he is. We are living in a day and time where women go to college and still receive less pay than their male counterparts. (I was going to link the White House page on gender inequality to this section; however, when I visited the site it too had been taken down as of 1/25/17) This part of the movement isn't about whether men are afforded clean air and water while women receive dirty air and water, as was so ignorantly stated to me earlier- it's about the fact that after all these years there are still women who are oppressed, in our country and in others.

Woman marching at the Women's March. January 21st, 2017

America was born of resistance. A resistance full of immigrants. My family immigrated 100’s of years ago, from mostly Ireland. We all come from backgrounds like this. Yes, we have an illegal immigration problem in this country. I have seen it with my own eyes. I also have a brain and it tells me that a wall isn’t going to solve this problem. Some of his other ideas may help, like stopping the “catch and release” tactics used by border control where we expect the immigrant will appear in court later. Building a wall though! A majority of undocumented immigrants overstay their visa. I do not see how a wall of any size will possibly combat that problem. Walls are born from hate and cost money we obviously do not have. Don’t tell me Mexico will pay us back for it without a solid plan as to how he plans to accomplish that either. Now his call for better vetting procedures I am all for! I am hopeful of what his ideas for how to revamp our vetting process will be. I am also somewhat hesitant to hear them, It seems as though they will include a ban on travel to the U.S. from muslim countries. We have yet to see for sure though. To tell you the truth though, it really gets to me that we are even discussing building a wall when there are American's without health insurance, veterans being provided sub-par healthcare after sacrificing for our country, and middle and lower class families that work their butts off and still can't afford their premiums and co-payments. 

Woman at Women's March. January 21, 2017

It has become increasingly obvious that a large part of the world has a message for anyone that will listen. It is being screamed from every corner that women have rights, minorities have rights, immigrants have rights, Democrats have rights, Republicans have rights, HUMANS have rights. Those are beliefs I can stand by. I believe in the rights of humans, whether those other humans are “Liberals,” “Red Blooded Conservatives,” or otherwise. Despite our viewpoints on the issues we are still human beings. If all of that makes me a Democrat or a Liberal, a Feminist or a Nasty Woman- then so be it. Bring on your labels. I'll wear them proudly.

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Ignorance and Judgement is Present in Every Type of School

It is common knowledge among the special needs community that as special needs parents we accept a level of ignorance and judgement from the public when it comes to our children; we even accept it from our family. While it shouldn't be so widely accepted now a days, it is and it seems to be spreading. This week I felt ignorance and judgement from a place no parent should ever feel it, one of my son's teachers. I know a lot of us have been there but that doesn't mean we should or that I am going to accept this as being normal.

Here's a little back story:

I've dealt with ignorance before. I've even written about my family's experience with the school districts we've dealt with in the past and it leading us to choose homeschool, Until now I'd never dealt with it from a homeschool teacher. I hope to never deal with this again. My family uses the K12 program which heavily pushes a General Education and Special Education curriculum for their students, as most schools do; however in our case my son's teacher doesn't require the General Ed class be attended if we can't make it. Now before you get all up in arms over this lack of inclusion-K12 is homeschool. It isn't exactly the same as a brick and mortar school.

With that said, this is what happened:

During Math class this week my son's teacher, whom has nothing to do with his case, asked us to wait ten minutes after class in the blackboard room. Of course I did as asked. When she finally came in she was full of attitude from the start. She immediately asked how Z was doing in General Education to which I replied that he wasn't going because his teacher doesn't require it seeing as though Zain is schooled with his little brother on the same level as him. I was surprised when she replied that she had only asked to see if she "had the right kid."

Now pay attention, this is where it gets good.

She followed this up by putting her nose so deep into things that are none of her business that I am surprised she didn't suffocate. She began by trying to tell me what is best for my son as far as his schooling and scheduling goes. Keep in mind this woman has never met my child or me nor has she looked at his case in depth. She is just a teacher that takes my son's homeroom teachers kids for Math. She didn't stop there though.

To sum it up, she went on to tell me that while making school and real world schedules meet up is hard it's something that must be done. I'd just have to try harder. Let me stop here and tell you that I home school two children with one computer. Between these two children I have 20 classes a day (some that are more than an hour long a piece), no less than 2 class connect classes with a teacher everyday, and 2 therapy sessions a week-all on the computer. Yet I'm suppose to find time for multiple additional classes that are 3 grade levels above where my son is all based on one woman's personal preference. Needless to say I was fuming at this point but she didn't stop there. She went on to tell me that "My choices are causing my son to be behind" [his peers in school]. At this point I was borderline homicidal.

I am extremely proud of myself for how I handled this, if you know me you will be too. I excused us from her class; told her to have a nice day; then emailed the teacher that is in charge of my son's case. His case manager was more than apologetic, which I appreciated more than she'll ever know. She also said she was going to have a talk with the teacher in question. Now let's just hope she does and this doesn't happen again. Until this point we were enjoying the K12 program.

Now this is my question, my point: When did teachers start thinking that it was OK to talk to a parent in this fashion? We know our children are behind, we set through IEP meetings, therapy appointments, and Doctors visits and listen to the percentages and levels several times a year. Did she say this stuff for fun? Did it make her feel better about herself to tell a mother that has worked her butt off over a decade that she was the cause of her child being behind? I'm assuming this teacher has no children of her own or she wouldn't have opened her mouth.

What is for sure is that she left this special needs mother confused. I felt every emotion a person can feel when she said these things. People need to think before they speak. I think it comes down to that. We are losing the ability to stop and think. When that happens people get their feelings hurt and families pay the price. While with this particular subject I desire for liberosis when it comes down to it this is one that we all must care about. The public needs to realize that this isolation we feel, this condemning judgment shown to us special needs parents extends into our schools as well.

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Assume is Such a Nasty Word

I was suffering from writers block a few months back. I was so busy and stressed out over life, yet to my dismay my normal stress reliever (writing) wasn't producing results. I'd sit down in front of the computer and nothing, and more nothing followed that... after that, you guessed it, even more nothing. I was sure my brain had broken. It has been driving me insane. My conclusion to this problem?

I decided to start writing about my life instead of trying to come up with topics that'd grab attention.

My life, after all, is pretty awesome. Most days that is. Why not share it?! 

My Family

With that said: Here you go....

Please Forgive Me, I Woke Up Today Inside of Someone Else

When a bad day becomes a gift:
 

I wake up exceptionally early each day in order to get things done before my demon spawns fly out of their rooms and wreak havoc. Waking up that early isn’t fun but it is literally the only quite time I get a lot of days. Most days this desire seems to fall upon my children's "deaf ears" though. This morning was no exception.

I awoke at 5:45am and preceded to listen to music while I picked up the house and looked over their home school plan for the day. Looking over the plan and getting it ready is imperative to the day going smoothly. In case you don't already know, Zain has autism and can be a handful at times. He requires sameness each and every day. This routine is important to him being able to function. None of this diminishes how amazing he is though. In addition to Zain’s autism, Dryden has ADHD and as a result is beyond hyper and inattentive. At times it is way too much to take. I honestly think it is a whole lot for him to deal with too. His poor brain never stops. It is so extreme that he hurt his neck months back due to his hyperactivity.

Courtesy of: www.DefyingTheSpectrum.com

Courtesy of: RiverviewHealth.org

But I digress…

Fifteen minutes after I got out of bed Zain sensed my presence missing from my room and came stomping into the living room. With utter selfishness I thought, "There goes my hour of alone time. No quite time today. Another day without it. I do believe this is a record by now." Of course I didn’t say any of this. Not saying the selfish things that we think is part of being a good parent. So, undoubtedly this isn't what I said. Instead I carried on with the mommy thing and said good morning, hugged him, and made breakfast.

Let me just take a moment to ask you this: Are there any other mothers or fathers out there that plead for that hour of quite time, even if part of it is spent cleaning? If you said you don't and you love having you children around you 24/7 I am here to tell you that you're a damn liar. We all entreat for that time. We love our children but it’s how we keep ourselves sane. You know that invisible "line" that tells you that you are a parent and a productive member of society, you know, the one that also reminds you that you aren't a rock star that has no responsibilities? You know that "line," it’s called reality. Yeah, that hour of quite keeps that line from blurring. So you see, knowing this makes it understandable that I was somewhat irritated by the whole day at this point.

Shortly after Zain woke up Dryden did too. He came out of his room rubbing his eyes, in nothing but underwear (which were in no way what he went to bed in.) He immediately asked if it was really a school day or if he dreamed it. To this Zain replied by saying, "Yes there is school Dryden, we have to do school every day. No stop." This came out in an extremely smart-ass tone. To which Dryden snapped back, "Nuh uh Zain, we get breaks." Now it is on. Zain's authority and his word have been questioned. Blood must be shed. (While I am kidding, in a way I am not.) It’s the one-sided thinking that Zain lives with as a result of his autism that caused this fight. He wasn’t giving up and the exchange lasted for about 5 minutes. What am I doing during this you may ask? I was laughing inside, yes, ok... I admit it. This has become such a common occurrence in our home we have to find the humor. I definitely found the humor in this, right away. I might as well have popped popcorn. It is hilarious the things a 9 and 12-year-old will come up with. I do believe I was compared to a disgraceful slave driver, a callous Police Officer, and the President of the United States.

Instead of getting mad in that moment I surprisingly realized that this is a boon, definitely a desirable state of mind to find yourself. A certain way that I can tell I’m a good mother. You see, nowhere in there did my children accuse me of being their friend. Obviously I'm doing something right. Amazing insight for me in my life. My point? Don't always assume something is going to ruin your day; those moments of stress can in turn be a piece of good fortune. I'm just now learning that. Sometimes assuming can cause you to wreck your day. What I assumed was going to end up being a stressful day ended up being made before 7 am. I doubt I’ll be lucky enough to have such a learning situation thrown at me again for a while but I'll take this smile and wear it for as long as I can.

Then again it seems maybe I haven't learned my lesson about assuming after all.

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Our Home School Family

As we sit down and let our evening wind down I find myself reflecting on our home school experience. The last few months have flown by. One moment I was anticipating the beginning of the school year, now here it is. Where did the summer go? It seems like it gets shorter every year. With the beginning of this new year I find myself reminiscing about our summer break. I bet you find yourself looking back on your family's summer as well. If you're anything like us you had a crazy summer! Ours consisted of both of our children having minor surgery, lots little league games, tons of biking and skateboarding, hikes, visits to Volcanoes, climbing on the Fremont Troll, and having several family members come out to visit us from the east coast. It was definitely fun for the most part BUT it's that time of year when we have to pack those experiences away in our memories and shift focus and priorities.

First Day Picture

School in Our Home

 In most families the start of school consists of buying new clothes and making sure everything is ready for your child's return to their brick and mortar school. In my home things are very similar but also quiet different to the normal school routine. You may be asking why?! You see, I teach my children at home using the K12 program. Some of you may have heard of it, some not. This program has been wonderful for our family. In this method the student uses a lesson plan that the chosen k12 school provides. The student must have a "learning coach" in order to help them and instruct them during their lessons. In our case I am the primary learning coach. K12 solved a lot of problems we had with our home school district but with all of it's allure you mustn't forget that it's also a huge commitment. Research and more research is needed before deciding on any alternative education method for your child, this program being no different.

While K12 is a free online public school it isn't all together hassle free. Your research will show you that. The school doesn't provide all the supplies- including but not limited too: paper, crayons, pencils, poster board, in some cases a computer, your internet connection, random crafts material, calculators, etc. (Of course this list changes based on your child's grade.) Our children are still in elementary school. You also need to be extremely prepared for what exactly it means to be a learning coach. Looking at the schedule everyday is daunting but do not over work yourself and focus more on percentages then daily work. Also, make sure to take into account the time needed to complete the required class connect and therapy sessions (if your child needs therapy) each day.

A little about my K12er's

My oldest son, Zain, is autistic. When at his local school he required a one-on-one paraprofessional with him all day long; with K12 and our school he is able to succeed with his teachers and myself aiding him only. We joined K12 as a last resort to end the bullying Zain was experiencing- as well as remedy his paraprofessional's inability to show up to work. This is his 2nd year with K12, meaning we are still technically "newbies". We love their program though. Zain's just about 12 years old and currently working on 3rd grade level work. He is technically a 5th grade student; however he would be in 6th grade had he not been held back.

Zain and Myself

My youngest son, Dryden, is typically developing and just started his first year with K12. Dryden didn't require any extra help while in his local public school; the choice to attend K12 was made by Dryden on his own. He is 9 and in 3rd grade. Dryden is working at his expected level for his age. However he does have a touch of ADHD. By a touch I mean it oozes out of his pours most days. It's just part of his overall charm, got to love him.

Dryden and our dog Dug

Getting Ready for the School Year 

Of course having access to a computer and the internet are two of the highest priorities for this fashion of schooling. Since those two elements are not necessarily an issue for my family I really don't have any worries concerning them. Just be aware that these two required elements are not provided by the program (in some cases a computer may be, that depends on the school you go through and the state you live in) Another important point when homeschooling with any program is providing the right environment for your children to learn in. I try to remember that a messy home leads to a messy mind. Part of this environment includes having a functional set-up in order to teach effectively.

In our family's given situation having an area that has a separated teacher and student area works best. One that is somewhat like a regular classroom. Given that our oldest son is diagnosed with autism having a situation that is as close to a classroom as I can provide is important. In our home there is an area for me to work out problems with them on a board and there are areas for both of them to work independently. Both of my boys and myself also decorated the areas in a way that reflected an area they would enjoy learning in. This main learning area is simple, has visual aids for my oldest son, and is comfortable for them both.

Our learning area

Their preparation shelves

What they see as they are learning

They can clearly see their schedules

Our First Day of This Year

Now that the first week of school is here don't worry if you use K12 and are confused. The first few weeks of school are always confusing. If you aren't left wanting to pull your hair out I have found it is a good implication that you are doing something wrong. At least in these introductory weeks. I have to keep reminding myself that we have to pace ourselves and learn at our speed, especially with a special needs student. I must say that last year with one student was a faster process for me, I am finding so far this year that having two students is vastly different but doubly as rewarding. It does takes longer to complete the daily work because they both need my help; however it is nice to watch my children help keep each other on task while I am teaching. Who knows maybe this school year will end up bonding our family even more closely than we already are. What I do know for sure is that once class connects start and we fall into a routine things will go much more smoothly for us. That applies to both my children and myself.

As our first day ticked on we found ourselves finishing lesson after lesson, class after class. While we did experience our own hick-ups we are able to say we persevered and finished up our work without overworking ourselves. Now to move onto day two. Here's to hoping for another successful day for all of us learning coaches and our students.

Working on our school work on day 1

Self Portraits

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The Gentleman with the Unheard of Strength

I want to tell you a story about a gentleman with unheard of strength. This fellow has spent several years of his life in a great deal of pain. Pain that no person should have to live with or work through. He has lived with this pain with a level of dignity and reserve that makes it where he deserves to have his story told. This guy puts his family first, way ahead of himself. This gentleman has given bone, sweat, and blood for his family. The least we should give him is respect and acknowledgement. Now, let’s go back about 3 years ago…

The Accident

 It's the fall of 2012. Said gentleman and his youngest son were at the skate park having some quality time together. At some time during the day this gentleman folded his right knee up and felt his outside ankle hit his hip. Could you imagine the instant pain? The screams his wife heard on the other end of the phone bordered homicidal. She had no idea what had happened and neither did he. What he did know was that his son was there with him. He didn't want to scare him. Given that fact the lad composed himself quickly and with no thought for himself. Instead of carrying on he cut off his tears and "made a game” of getting to a safe place until his wife got there. Upon arrival his wife could see the pain radiating from his eyes the moment she walked up. There was no mention of the pain from the strong fellow though. Not one complaint passed his lips, not one tear flowed from his eyes while his son could see. Instead he backed up his child as he told his mother how proud he was of himself for helping his daddy get to the car. Talk about one amazing man.

The Aftermath

 Ok, so... let’s fast forward a few days from the accident, to the orthopedic doctor's office. The guy and his wife sat there in shock and disbelief as his doctor tells them that the guy had in fact torn his ACL, as well as having torn his medial meniscus and lateral meniscus. They were completely taken aback in that moment. Of course they knew of these types of injuries and how devastating they can be, both on the patient and their pocketbook. Ultimately the doctor felt the best thing to do was put a brace on him and do physical therapy. They agreed...

Unfortunately a few months later the gentleman and his family moved across the country and had to wait for him to receive proper treatment. He rarely complained about it as the time went on, his wife never saw him cry in pain. Instead he hiked with his family. That’s an understatement honestly. He didn’t just hike; the man climbed 4 major mountains in Phoenix, AZ, walked all over southern Indiana, and went on adventures to Mt. Rainer and Mt. St. Helen’s with his family. They had 4 mile long family walks twice a week, every week, each spring and summer. He also moved his family in and out of 3 houses in 3 years, with only his wife’s help with two of them- this due to the job changes. Still no complaints from him, that is until one day 2 months ago when the gentleman called his wife from work in pain again.

The Surgery

Lack of ACL 

Knee incision after surgery

Knee incision after surgery

One week after the phone call from work they went to a new orthopedic doctor to see about getting surgery for the gentleman. When the doctor was able to get him into surgery the doctor found out that the gentleman’s injuries had worsened. His ACL had completely snapped  a while back and it had been so long since that there was no sign of it anymore, his meniscal tears were worse as well. They went in and cut out a piece of his hamstring. From that they created a new ACL and attached it. They then cleaned up the other tears and closed him up. The most interesting part was that the gentleman had worked so hard on his injured knee that he wore the knee bone away from it rubbing against the other bone (impound fracture). 

This is an inside view of his knee bone

His doctor told his wife that the impound fracture to his knee was the most impressive he had ever seen. How many people do you know that could tolerate that, without help, for that long? I didn’t think I knew any until now. This gentleman is simply remarkable. The surgery was hard on him, but if you don’t know him you’d never know it. He was operated on the afternoon of Thursday January 15^th- he returned to work that following Monday. 4 days later! He has worked every day since, on crutches and on cane. Still few complaints to be heard from this extraordinary gentleman. Now all he talks about is how mad he is that the injury happened to begin with. It happen doing a trick he’s done a million times, he says. You have to admire his spirit.

After surgery

 This gentleman is about half way through his ACL reconstruction recovery now. His process has been grueling. He has had to relearn how to walk on his leg. He is being retaught how to walk up and down stairs, hop, and run as well. He has been told he will NEVER skateboard again, given his strength his wife doesn't believe that. On a lighter note: the gentleman reports that his physical therapist says that he is about 2 weeks ahead of where he should be. That doesn’t surprise me though. Said gentleman is determined to be recovered before summer. He wants to play with his children.

The gentleman I am talking about happens to be one of my heroes and one of my biggest supporters. I married him 13 years ago. It was the best decision I ever made. Chaz has always taken care of his family above all else. He has an almost unheard of work ethic and a devotion to the 4 of us that I have never seen. I am luckier than I could ever know to not only be married to one of the strongest men on earth but to be married to my best friend and one of my heroes as well.

Week 3 of recovery

Would the Real Autism Specialist Please Stand UP? Insurance Companies Denying what Doctors Prescribe

Would the Real Autism Specialist Please Stand UP?

Insurance Companies Denying what Doctors Prescribe

In the last 10 years I have dealt with a number of injustices following my son's medical care but the fight I am starting into now is proving to be the worst...

I haven't posted in a while because my son woke up a few months ago and I found he'd been possessed (not literally). He's regressed and is exhibiting the behavior that he did in his younger years, the behaviors that I had worked so hard to help him overcome. At this stage if I don't write about it I may explode. SO...

 His regression is presenting in ways such as including but not limited to these:

• His temper tantrums are epic and his meltdowns are even worse. 
• He destroys rooms and is physically violent with me at times.
• He is biting himself and eating socks (literally).
• He is acting like a 3 year old at all times. 
• His stimming has changed.
• His sleeping patterns have changed, they are so much worse (which is hard to do)
• If his eating gets any more picky I'm in trouble again. I hated the picky eating issues... ALL sensory with him. 
• Going a long with that, his sensory processing disorder is presenting off the charts some days.
• He has developed a few TICs. 

My Son and Me

Where I live and love: 

 Where I live there are no behavioral therapist to be found, not any that will treat my child anyway. There are no specialists that see autistic children over the age of 8. I moved to this corner of the U.S. with the false belief  that things are better for families like mine. Upon arriving here, over a year ago, I immediately realized this wasn't what I thought I'd signed up for, me or my husband. Things aren't great unless your kid is under 8, I sang this constantly in my head. It took me months of pleading to find a doctor that would treat my son. The doctor I finally found had to look up autism before she saw us, I called the shots, changed his dosages, etc. No jokes about it, that is how things worked (and it wasn't the first time, in the Midwest I found this treatment as well), none-the-less I appreciated her to the ends of the earth. To my dismay (and adding to the issues that I am having medically for my son) this afternoon I was informed by her office that she will no longer see my son because she is retiring this week. THIS WEEK! However, the issues didn't stop there, the fight with the school was beyond ridiculous. (To read further about that battle check out my emaxheath.com articles.) Autism never sleeps and it never takes a Valium; somehow though I can't imagine my life without it, chaos and all.

Seattle:

We were recently lucky enough to land an appointment at Seattle Children's Autism Center after waiting for over a year to be seen. AMAZING facility for autistic parents and children, they're too good! They bring to the forefront all the horrible things autism brings to a family, not what autistic children bring to the families but the horrible things the label, the definition, the transition, the unknown, the stresses and fears bring to us and then they come up with a way to address all of it. At this place they know how we feel and they know how our families feel, and they understand how our autistic children feel. They acknowledge them beyond a pat on the back and a smile. Their ways are flawless to an extent; for that hour you are in the room with that person you feel like family.

I walked out of there feeling hopeful, feeling like someone finally had our back, 2 weeks later I find  that feeling is crushed. Not by the Autism Center but by the people WE PAY to cover our medical care, the place that gives me no problems about my expensive psychiatric medicines but anything with 299.00 attached is treated like poison (299.00 is the diagnostic code for childhood/adolescence autism.) You see, our problem was that Seattle mentioned the magic denial phrase, the holy grail of parents of autistic children.... A.B.A. Therapy. The phrase that can send the best insurance companies and some doctors running. First thing first, find a NEW doctor to refer for Seattle and be denied again and start the fight.. Yeah, now I am in for THAT fight.. If you don't live in our world I'll translate... Basically we're more than likely screwed. (That'll never stop me though.)

Pamphlets to help obtain ABA because this fight is so common...

A.B.A. Therapy:

This therapy is expensive, beyond expensive. To the level that no family could afford it without help and 16 states still fight you on it (that fact is credited directly to the mother in the autism support group I help run that told me it.) I have been told 1,000 to 4,000 a month and that is conservative. Can you see why they deny? Doesn't make it any better does it? This therapy is proven, has been since the 60's. The Supreme Court upheld it and calls it beneficial. 1000's of parents stand by it and 10's of 1000's of families beg for it yet we all sit dumbfounded at an insurance companies power in providing it or not. Yet I set on the phone along side thousands of mothers who live my life and cry as a boy on the other end, whom has barely passed through puberty, tells me that this therapy is not beneficial to our children. To him I say: Have a child then tell me that. 

Yes parts of autism suck, the biggest part for us being Regence Bluecross.